Food Allergy Luncheon

Isn't great to get together with friends WHO GET IT!


-what a relief to be with people who get it, who believe you, who understand that the slightest bit can be harmful, and who are full of positive energy, and recipes, and tips on how to get through the rough spots.


At the amazing Food Allergy Initiative lunch (www.faiusa.org) I saw a moving video of teens talking about their allergies and how they'll feel when they go away from home:
One cute guy said: I'll have better things to worry about than my allergies-- like my classes. 
And one young teen said: I'm so lucky to be a girl-- we get to have a great fashion accessory to carry our Epi-Pens and Benedryl...
Is that the best!



And this week I spent time with friends who both have sons going off to college-- and we talked about what to bring, how much to text in the first week, when to cry (and when not to) as well as
ALLERGIES: 
I told them I send bulk items from Amazon-- this week I sent Enjoy Life CocoLoco Chewy bars --and to get  free shipping I added a bubble gun.  It's Spring--what kid doesn't want a bubble gun!
 And they told me that the new Rice Chex cereal is good, and I told them that the blue Peeps have milk-- FYI only the yellow chicks don't-- 
THEY GET IT-- and it buoys me up every time.


So whether it's a support group with regular meetings; reading a food allergy blog; going to a conference or a luncheon or just calling a friend-- food allergies are much more manageable with  people who get it.  




PS:
 Reaction alert -- Kingsmill Brown Rice bread-- even tho the listed ingredients were fine, and when I called the customer service line--they confirmed all ingredients.
   I  have to say the Kingsmill/PaneRiso people were great on the phone.
The woman read all the ingredients, including trace; looked up what kind of "caramel coloring" they use (dairy free and all natural) and even looked up what the cellulose is (made from denatured tree bark....)
Son was fine-- but won't eat that bread again.

victory!

In my city it's summer-- should only be spring, but it's summer with a high of 82 and humidity-- means lots of flowers and people in shorts-- and gets me thinking of summer foods-- and my goal to learn how to make a good granita (crushed coffee ices like in Italy) and fruit sorbet. I am looking for good recipes-- and easy too-- I am not very skilled at desserts- but maybe I'll have better luck with icey things than baked goods.

And, a small victory-- the mini marts at my son's college will now start selling plain rice cakes--a favorite snack of his.

Why is that a victory-- because before now these marts only sold "popcorn' or 'caramel' flavors-- the popular flavors. But my son advocated, and the dining services people listened and worked on it and found a supplier to provide these 'less popular' plain brown- rice cakes that are safe for him.

I'm curious if these rice cakes will be less popular, knowing that healthy snacks and whole grains are all the rage--for only the best reasons-- among everyone, college students included.

Holiday Time --Again

It’s Monday morning and you’re doing the final shopping for ______________(insert a Holiday here )and your –mother—aunt—cousin-- calls and says “I’m making strudel for the holiday dessert and I know that Johnny is allergic to nuts, but it really doesn’t taste good without them, so I just wanted you to know.”

You hang up the phone –and (circle one)

A. Scream B. Cry C. Laugh D. Shake your head E. All of the above

All of the above is the correct answer – and then you get the baking mix from the cupboard and read about how to make a strudel.

This is a typical holiday conversation for a food allergic family. We’ve all been there, and we all know what it feels like to NOT be able to make that special family recipe for a holiday meal. Well, as Loretta famously told Ronny in Moonstruck “Snap out of it!”

This is our life.

And this is especially true around holiday celebrations when ritual meals, steeped in tradition , are the standard fare. Food allergies can cut us off those traditions, memories—whatever you want to call those remembered moments from our past-- and not allow us to make those dishes.

But we can’t. And neither can my mother or my Aunt Sadie. Instead, I can make a menu that does not include allergens—and no one will know the difference. I can ask Cousin Pesky to bring a green salad—since that would be ‘easier’ for her—and ditch the strudel altogether. I may feel a pinch at giving up a family tradition, but what really makes the meal a tradition is that we gather our family and close friends to share it. That part doesn’t change.

As parents we must smooth the way for a happy holiday. People may mean well, but don’t have as much practice at keeping our children safe—or people may not want to change their habits. Whichever the case, your child will have a happy and safe holiday because you –and possibly only you—make the effort to prepare and bring a special meal or host a worry-free fete. That you must think ahead, prepare, and possibly reorganize tradition—that is a given in the food allergic household.

But, above all, we must remember that --while the menu may need to change-- the message of these holiday meals does not. What we are eating should not be as important as who we are eating it with— as well as the laughter and gusto we bring to the table—no matter if it’s ravioli or rice cakes and jam.

The love, the sharing, the connection are what truly matters and there is no substitute for that.

May contain and other Food labeling statements-- do we buy or not

Food Allergy medical conference produced lots of good information --the excerpt below is from AAAI 's research abstracts on their website AAAI.org (link below)

it's about a topic near to my heart-- 'May Contain " and other labels-- here's their preliminary study results--my comments in bold italic

"Precautionary statements varied considerably in their effectiveness in deterring consumer purchasing with the statement “not suitable for” resulting in more than 80% of consumers not purchasing the food."

I've never seen this label actually-- maybe it's Canadian, and I am not. Canada has a more finely tuned ear to the voice of food allergic people-- and "Not suitable" is more direct than "May Contain"

"However, the precautionary statement “packaged in a facility that also packages products containing [allergen]” deterred purchasing in only 40% of directly affected from the general population, in 76% from the database of children with peanut allergy and advocacy groups, and in 73% of the indirectly affected. "

The statement below -- again from the research at the AAAI conference speaks directly to EDUCATION-- Those of us who are educated in Food Allergies, and who have some knowledge of the danger, are MORE VIGILANT.

"The directly affected from peanut allergy registry or the allergy advocacy associations and the indirectly affected were similarly vigilant; both were more vigilant than the directly affected randomly sampled from the general population."

So we should continue to educate educate educate-- that makes us-- and our all our children-- more safe.

http://www.aaaai.org/global/latest-research-summaries/Current-JACI-Research/efficacy-of-precautionary-allergen-labeling-on-foo.aspx

College visiting

College has been wonderful for my son. But with food allergies not so hot.

The problem is proteins. With multiple allergies finding proteins without sauces and breaking may pose a challenge. What options are there? A few

Supplement

Go to a grocery to purchase cold cuts or beans(While Foods market has juice box containers that arête package kidney beans. And there's always can openers. )

Send foodstuff to your child. I am notorious for shipping 36 individual containers of Cheerios via Amazon). It's amazing what is now packages for individual use or in resealable packets. Olives! Black olives!

Get a micro fridge

That way your child can have some options. Oatmeal. Rice packets. Popcorn. A place to store food. Baked potato

investigate

Some times foods/proteins are there and one just has to find them. Kosher stations are often a good source for food allergic kids. Possibly vegan--but tofu and chickpeas are high on I greediest lists for that cuisine.

My point is dining hall experiences are not as srraightforward as restaurants can be. And yes it's a lot to add along with new friends and classes and living on ones own -- but that's life for our kids and we can help by being the support the springboard for them.

rejected again

Rejected again!!!
My cookbook was again rejected from a publisher--with what I can say is the funniest reason I've ever heard-- and one that belies the publisher's understanding of food allergies:

The press is moving toward less meat in recipes and my cookbook had too many meat oriented recipes.....

Well-- if one can't eat eggs, dairy or nuts, then how does one get proteins but from meats?
Man (woman and child) does not live on kidney beans alone!

On to self-publish in some form. Maybe a partnership with a food allergy organization-- tune in for more....
and Merry Season to all!

recipes

been thinking about new recipes-- in the never ending pursuit of what to cook for dinner. And I have a few new ideas-- not exactly recipes yet, but ideas: potato soup-- no cream of potato soup-- just potato soup. With a chicken base and lots of potatoes and green onions and a slice or two of carrots and pepper.

Or Borscht-- now that it's beet season again on my coast. By the way, there's been a frost--heck there's been a blizzard-- so the kale should be tasty now.

A note about college: in our experience, need some supplemental foods-- granted my kid is allergic to all Big Eight foods, but not enough starches and not a strong variety of proteins. But I'm hands off, and he's hands on, so it's working-- with some trips to Treasure Island (the grand supermarket there) and some treats from home (like all moms send).

more later-- and a real recipe for those soups when I get the mix right.

college part II/ cross contamination

I've been thinking lately about how much is too much: cross contamination-- how can we measure the degree to which some individuals will react? Will one child get hives, another go into anaphylaxis if there the hamburgers and cheeseburgers touch each other in the serving tray? And how does one negotiate life like that? Not knowing, and responsibly not touching. It's hard, and it would improve the quality of life for many if the cross contamination issue would be re-examined. When kids are little, then the strictness needs to be enforced to make checking a habit-- but as these kids get older, is there a way to safely and responsibly NOT worry as much about cross contam? Can the hamburger touch the cheeseburger for some young adults and not cause a problem? Can the fryer work both French fries and onion rings, and not cause a wheat reaction?

don't know but would like some opinions, especially as our kids go out into the world themselves.

off to college

Off to college-- drop off was good, pouring rain but happy and excited. The first day of orientation brought the "crowbar" ceremony-- you guessed it where the kids and parents separate! and for our family, brought the food services powwow. My kid and the head of food services sat down to make a plan. The food services head also has a daughter with food allergies--so she gets it, which warms my heart.

The plan-- first couple of days not all food stations are up and running, so limited options of burger, salads, grilled chicken and brown rice. not too bad. When all up and running-- there's steamed vegetables, soups, rotisserie chicken a kosher station with options and a gluten free area which may offer some things my kid can eat.

I did not participate-- my son did it all himself. and later in the week, learned that some packaged foods at the mini=mart ten steps from the dorm will work out fine for those snack times and days away from campus.

I think the food is working... but really a bit empty at home!

More on the reality of not cooking ALL THE TIME-- later, when it sinks in.

some new food sources

Tried "Viva Mais" a corn cous cous-- actually I thought it was like a coarse polenta--which admittedly I'm not very good at making, but still it wasn't cous cous. I will try it again--possibly as the shell for a pot pie-- which I think could be good, or even an apple and savory dish.

I got this from an online site called Olive Nation which specializes in Italian foods with some gluten free.

Also got some candied orange peel from MarketHall.com This confection was delicious and popped right into the fridge for a cool little tart treat. (As I mentioned had tried in London and liked, so found some closer to home),. Again a good site for many food specialty items--especially candies and candy makings-- but not geared to allergic families.

more soon!

new foods--or rather new ways to cook old foods

our house isn't about new foods-- new preparations is what I meant. Tonight : Pork Chops-- I've been watching a lot of Food Network (OK I;m a masochist since we can't eat anything any chef makes) when I was home recuping from flu.

But back to the Pork Chops: So Bobby Flay or someone dredged their chops in flour and spices before sauteeing.

Well-- I liked that sound of that, so I mixed up a batch of rice flour (bread mix actually from Orgran Quick Bread Mix) and chile powder, and salt and pepper and dredged my chops in that.

In a frying pan I heated olive oil with whole garlic cloves to a nice noisy heat-- and threw the chops in. Quickly they got color and sear on one side and then I turned them. Other side seared, I turned the heat down a little bit and kept an eye on them --turning as necessary for about 20 minutes. and viola, yummy pork chops cooked a little differently from usual. (BTW-- chops were only 1/2 inch thick--so thinnish --that's why only took a short time)

I guess my point here is-- change is good. A little innovation goes a long way when it's hard to really try something new.

Travel and other related stuff

We traveled for a graduation present-- on a Baltic cruise which was fabulous.
As I've mentioned before, I like cruises because the dining managers prepare food specially for my son, off the regular menu, but with crudite to start and plain salads etc.
As always we got a menu the night before and made his choices, and invariably it was correct and delicious. Lamb chops, steak, quail! and steamed veggies and lots of various potatos- baked, fried, boiled, etc. plus rice .
Also on cruises there is a carving station at lunch or burgers all day. The salad bars are clean and neat with offerings like lettuces, carrots, beets, olives, peppers etc. so really great since my son can get food as he needs for his growing active life.

On full day tours we arranged food at restaurants or made do with bars I had brought and veggies. Usually, we found that we could find simple things --not as many fillers or use of dairy or sauces in the countries we visited.

AND there were great opportunities to try foods-- yup he tried hot borscht (yummy beets, onions, broth and some pork strips) --we had inquired about the ingredients which as tourists they were only to happy to share with us.
or potato soup in Germany-- potatoes and veggies in a clear broth-- delicious on a chilly rainy day in Berlin.
Or candied orange peel in London where a savvy waitress noted his asking for his food plain, asked about allergies, and brought the orange peel when she brought the complementary mini cookies after dinner. separate plate just for him. VERRRY nice and classy too.
So we enjoyed, saw lots of amazing places and met lots of great people, who were helpful and kind and interested in understanding the issues we faced.
more soon,

summer's here

Summer is here!

Graduation, with its attendant food events, is over. The BBQ for seniors, the Prom, the post grad reception-- all the things that are wonderful and bond the seniors together are also all the things that are hard for my kid to negotiate.

But-- eat beforehand--as I found out that not eating is easier--and more "normal" --than bringing own meal.

Drink something-- but don't eat

Plan ahead with the catering manager or teacher and see what happens...

All of these strategies were employed-- and each situation brought its own spin to the plan.

Overall, I tried to stay out of the way.

Nothing new in our strategies--although perhaps they were new to us.

This summer I will impart cooking basics to my child. not exactly sure what that means yet, but it involves how to roast a chicken and why olive oil is the best.

More soon, when all the graduation momentum and emotion simmers down.

letting go

OK I am not good at letting go.

is it the mother in me, is it the me in me?

don't know, but I am not good at letting go.

I still want to have control of the food situations, and while sometimes that works, more often-- now that my child is old enough to "do it myself" -- it does not and I am caught in the hailstorm of "why didn't you leave it to me."

So I try to be hands off, and let my supremely capable child take care of it.

Maybe it's that I want to continue to protect him; maybe it's because I want to shield my child from the harsh world out there and the hard realities of the limitations of his diet.

Or maybe it's just a habit.

Or maybe it's that I am trying to prove I'm perfect and not listening to anyone else... gee I really hope it's not that because that makes me seem very limited myself.

So I struggle on, not quite winning the battle of doing it all, not quite not doing it all.

reflections from a very rainy afternoon in NY

COLLEGE

Apologies-- some of my blogs over last months have been in a glitch-- so am reprinting one here--about college choice.

College has been picked__ it's one where we were lucky enough to have eaten lunch. Lucky in that we know it and saw with our own six eyes that there is kosher and gluten-free and plain burgers and steamed veggie separate from other things and lots of people getting special meals.

YAY.

Plus website is terrific about it--so people must be too.

and anyway--it's a great place even if he has to keep a fridge with his own stuff --he'll be getting a phenomenal education with what looks like a bunch of bright engaged kids!

I think we-- and by that I mean the collective we-- have always tried to show our kids that the world is a wide open place where life is good and is not all about limits. Limits exist for everyone, and we shouldn't put them on ourselves, nor should we ignore their realities. But overall, we can choose many many options--even if one of them is always eating steak and potatoes because the company is good. As my son says "it's all good."

And, it is.